Sunday, February 19, 2012

Millie- The Fighter.

This is Millie Flamm. Millie is 6 years old and has the best smile I have ever seen!!! How do I know Millie? She is my aunt's niece! What makes Millie so special? Well, she has gone through 2 years of chemo for a horrible disease called leukemia. She was just 4 when she had to go through it the first time. YES. I did say THE FIRST TIME. Her and her family were celebrating "no more chemo" when they found out, the monster was back. Her only hope now is a bone marrow transplant. They tried to see if her younger brother was a match, and unfortunately he was not.  You can help Millie! PLEASE PLEASE PLEASE consider donating your bone marrow. It is crucial for children (and adults) with this horrible cancer. THIS IS HER LAST CHANCE! Millie deserves this so much. She deserves to do great things in life.

I went to visit her while I was up at Primary Children's Hospital last week for Carson. We were talking about how awesomely her room was decorated for Valentine's Day. Millie started talking to me and do you want to know how her sentence started out? "The first time I found out I had cancer...."  To me, that is soooo sad! No child should have to say that. I just started to cry and wanted to hug her so much. She has such a wise soul and seems so innocent, yet she is so grown up already.

If you can't donate marrow, please try to donate a little time to making a card or note. Those sort of things just light up her day, I'm sure! I plan on visiting Millie again soon and would be happy to deliver your cards (or anything else you would like) to her. Thanks everyone, and pass along the message!

If you want to talk to Millies parents or ask questions, please contact me and I will give you her parent's facebook info (by asking them first)

Tuesday, February 14, 2012

MRI Results/ Valentine's Day

Well today was really awesome! I woke up early to make Adam some home-made waffles, but soon found out we were out of eggs, so I sent him to the store. He came back with bacon, eggs, hashbrowns, and orange rolls. We had a BLAST cooking together  :)    After our yummy breakfast, we watched a Johnny Depp movie <3 (Adam also brought it back from his trip to the store.)  We babysat our cute nephew Blake and adorable niece Kaitlyn. I also had job training today and may I say, I DID AWESOME! I love my life!

Carson's doctor called us today! They got the results and everything is A.O.K!  He does have a little fat patch at the base of his spinal cord, but they said that is nothing to be concerned about. I am soooo grateful for all the love, positive energy, and prayers everyone has sent our way. Thanks for all your support everyone! I feel so much better knowing that Carson is not going to have all the struggles I have had to go through. I know that there are worse things that could happen (believe me, I've seen worse off!) but it is a HUGE relief knowing that there is without a doubt no question that he is free of Tethered Cord Syndrome! Yay! So Carson will (continue to) live a care free and normal life. Such a happy little booger!

Thursday, February 9, 2012

Carson's MRI

Everyone has been asking about Carson. (I recently posted via Facebook we had an appointment with a neurologist) Here is the update so far: Carson has an MRI on the 13th of February at Primary Children's Hospital. It is nothing that anyone should be concerned about because we don't know anything yet! The ONLY reason(s) they are doing an MRI is because he has a Sacral dimple (right above his bum on his back) and because I have a syndrome called Tethered Spinal Cord. They said they normally wouldn't do imaging, but due to my history, they want to make sure. He has so far met all the milestones for his age. There are other symptoms that we won't know about until he is older (bed wetting, tripping, pain, etc) but they want to find out now while we are ahead. I REALLY struggled with the decision of giving him an MRI because I didn't want to sedate my poor little booger. I've heard many stories about the anesthesia damaging children and I didn't want that for him. I also didn't want to put him at risk for developing more issues if we didn't "catch" this syndrome now. So I finally made a decision after talking to several people and getting input from other parents. We are going to go through with the MRI. It is scheduled at 1 on Feb. 13. I am very anxious, but I'm also 100% sure that I need to go through with this. There was just an overwhelming feeling that I needed to do it (once I had calmed down and put my worries aside.). Thanks for all your guys' support on this situation and love  :)  Let's think good thoughts this Monday!